First let me introduce my children. I have 3 boys; Oliver who's 11, Flynn who's 8 and Josh who's 5.
Oliver has allergies and carries an Epipen.
Josh has Autistic Spectrum Disorder (ASD) and was intolerant to wheat, gluten and dairy until recently.
All children have their own individual needs to be met by their parents ... my children have a few extras. There's no book to parenting, and the same applies with extra needs. We learn as we go along, making mental notes as to what works and what doesn't. We trawl the internet to find suppliers and accurate credible sources of help and advice. Well, I lose links and saved web addresses so decided to compile them altogether in one place! - I figured this may help others too! Any suggestions of anything to add or change ... let me know!
Meanwhile here's my favourite poem a friend showed me when I was at my lowest point going through the ASD assessment and statementing process with Josh. I felt like I was in a plane circling with no where to land. We didn't belong anywhere. I couldn't approach support groups as we didn't have a diagnosis. I couldn't read up on anything as we didn't know what the problem was, and when I did try to research the presenting symptoms, nothing made sense as he didn't "tick all the boxes". Just stuck in Limbo as we had no idea what was wrong ... only that something wasn't right. I felt like I didn't know my little boy any more. He wasn't the content, happy, bubbly, babbling and cuddly little boy I once knew. I was lonely, frightened and felt like my life was changing without my consent or choice, we were just getting swept along with endless appointments and no answers. I desperately wanted to help him, but I didn't know how. I felt helpless. I didn't know where we were heading or what the future held. The unknown can be a scary place.
And the pain of that will never, ever, ever, ever go away...because the loss of that dream is a very very significant loss. But...if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.
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My facebook page is here my world of sen where I can post updates much quicker than on here.